When I was first diagnosed with AS I knew that it was important to get a support network in place. As with epilepsy being able to connect and talk with people suffering with the same condition is so needed, it helps understand the condition, as well as helping you not feeling that you are not alone with it.
So I turned to twitter, which I have been using for a long time now and understand how things work on there, like 'hashtags.' These highlight the word or phrase in searches and many people look out for them so that they can connect with people with similar interest. So I tweeted that I had just been diagnosed with #AnkylosingSpondylitis' knowing that someone would see it and hopefully get in touch, to point me in the right direction for support and places I would gain more information on the condition.
Not long after Debbie the director of the National Ankylosing Spondylitis Society got in touch with me and recommended people to follow, who would become the foundations of my online support group. I would like to mention them all here, but there are quite a few in this list and it would take over this post, with rather a long list of names. Debbie and all of the people that she recommended are amazing and so supportive.
I would like to dedicate this post to The National Ankylosing Spondylitis Society and thank them for all of the great work that they do, supporting others with this condition and doing their utmost to raise awareness of this condition, which is often misunderstood and misdiagnosed.
Thank You NASS for all the hard work that you do for all with AS.
To find out more about the works of NASS here is a link to their website
To like NASS on Facebook
To follow Debbie on twitter here is her profile